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Showing posts from March, 2022

UTETEZI PROJECT PHASE 2: Making epilepsy a health priority in Africa

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 FOR IMMEDIATE RELEASE                                                                       Pretoria West, Gauteng :   The Utetezi Pilot Project, funded by the BAND Foundation in 2019, provided funding to five African countries to develop the groundwork to create national epilepsy task forces, the development and implementation of national epilepsy plans, and the introduction of educational initiatives to address the recommendations of WHO Resolution WHA68.20. The evaluation of the pilot project has provided direction and opportunities which will be harnessed in phase 2, where we will establish a communication plan, website and tool kit to share best practices. Phase 2 offers a small grants program to enable IBE chapters to develop plans at the national level and to w...

Celebrating women and girls

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                                                   women during the international Women's Day commemorations this year   Women and girls with epilepsy should strive to light their flame and start to celebrate themselves.  Information is power as such by equipping women with epilepsy with the much needed information and skills are key for their development. Generally, women and girls with epilepsy have to grapple with so much including stigma and discrimination.  In order to ensure women with epilepsy are not left out in most communities, programmes specifically targeting women and girls have been put in place  particularly ensuring they have the knowledge and information they can use for their disposal.  The South African National Epilepsy League has been spreading the word around that women with epilepsy not limit their challenge...

World Health Organisation approves draft Intersectoral Global Action Plan

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  Stakeholders brainstorming ideas during the WHO draft Intersectoral Global Action Plan session  In January this year the World Health Organisation Executive Board adopted  the  draft  Intersectoral Global Action Plan (IGAP) on Epilepsy and other Neurological Disorders . The draft IGAP will be presented to the World Health Assembly for final approval by all Member States in May this year. In November 2020, during the Seventy-third World Health Assembly (WHA) adopted resolution WHA73.10 requesting the Director-General, inter alia, to develop an Intersectoral global action plan on epilepsy and other neurological disorders in consultation with Member States to ensure a comprehensive, coordinated response across multiple sectors. Accordingly, the road to IGAP begun in 1997, after the International Bureau of Epilepsy (IBE) , International League Against Epilepsy (ILAE) and World Health Organisation (WHO) established the " Global Campaign Against Epilepsy"...

Investing in economic empowerment of people with epilepsy key to reduce poverty.

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People suffering from epilepsy, a chronic condition marked by recurrent seizures, mostly live in resource-poor areas especially in developing countries where epilepsy care and diagnostic options are limited.                      A woman holding a rabbit at a Kenya marketplace during the International Day of Women  commemorations.  Action Amos, the Vice President of International Bureau of Epilepsy – Africa Region said “investing in economic empowerment of persons with epilepsy has proven to a path to reduce poverty. We think empowering persons with epilepsy to rise out of poverty is essential for the sustainable development of any country.” According to the statement by the Vice President, he cited Mauritius as leading by example as they have managed to develop a sustainable partnership worth replicating with ‘Foodwise’, (a Non-Governmental Organisation) to ensure that the needs of persons with epilepsy are cover...

STORIES OF CHANGE

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  The International Epilepsy Day commemorations Most Chapters across Africa in an attempt to promote and raise awareness on epilepsy hosted yet another successful #50million Steps for Epilepsy Challenge during the International Epilepsy Day, which was held last month. The 50 million steps are a step for every person affected by epilepsy in the world is an initiative meant to promote epilepsy awareness globally.                      A woman holding a symbol of love during the International epilepsy day commemorations  According to the International Bureau of Epilepsy (IBE), the initiators of the campaign, more than 122,009,748 steps were attained, more than doubling the set target. This is an indication of the incredible effort by advocates for epilepsy globally, who came together to ensure the goal is achieved. The idea behind #50million steps for Epilepsy challenge was that “ When people walk in step together,...